Systemic sclerosis & Raynaud's
Performance of the EULAR Systemic sclerosis Impact of Disease (ScleroID) questionnaire as a patient-reported outcome measure for patients with diffuse systemic sclerosis
Authors' conclusion
The European Alliance of Associations for Rheumatology (EULAR) ScleroID performs well for patients with dcSSc.
Study context
- Population
- Patients with diffuse cutaneous SSc (dcSSc) from the large, multicentric ScleroID cohort (29% male, median age 54 years)analysed
- Participants
- 152 patients
- Outcome
- Performance of ScleroID in dcSSc according to the OMERACT filter
Methodological detailscohort, multicentre, longitudinal arm with reliability visit at 7±3 days and 12-month follow-up, OMERACT filter
- Cohort
- Multicentre
- Longitudinal arm with reliability visit at 7±3 days and 12-month follow-up
- OMERACT filter
Performance
As reported in the abstract
Construct validity, internal consistency, reliability and sensitivity to change of ScleroID
| Test or model | Spearman's correlation with SSc-HAQ (95% CI 0.69, 0.86) | Spearman's correlation with HAQ-DI (95% CI 0.60, 0.80) | Spearman's correlation with SF-36 physical score (95% CI −0.77, −0.60) | Cronbach's alpha | Split-half reliability coefficient | Test-retest ICC (95% CI 0.84, 0.92) | Standardised response mean, improved subgroup | Standardised response mean, worsened subgroup |
|---|---|---|---|---|---|---|---|---|
| dcSSc | 0.79 | 0.72 | −0.69 | 0.87 | 0.88 | 0.89 | −0.63 | 0.48 |
dcSSc
Spearman's correlation with SSc-HAQ (95% CI 0.69, 0.86)0.79
Spearman's correlation with HAQ-DI (95% CI 0.60, 0.80)0.72
Spearman's correlation with SF-36 physical score (95% CI −0.77, −0.60)−0.69
Cronbach's alpha0.87
Split-half reliability coefficient0.88
Test-retest ICC (95% CI 0.84, 0.92)0.89
Standardised response mean, improved subgroup−0.63
Standardised response mean, worsened subgroup0.48
Original publication
Performance of the EULAR Systemic sclerosis Impact of Disease (ScleroID) questionnaire as a patient-reported outcome measure for patients with diffuse systemic sclerosis. RMD Open. Published 27 November 2024. doi:10. 1136/ rmdopen-2024-004653
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