Towards the development of a definition of independence for individuals diagnosed with rheumatoid arthritis in remission: an 'OMERACT remission in rheumatoid arthritis patient perspective’ special interest group report
Authors' conclusion
Consensus was reached in favour of continuing the work towards defining targeted sub-domains, which will allow the group to develop an instrument to assess independence in RA remission from the patient's perspective. However, suggestions were made to refine and improve the current definition.
Study context
- Population
- Delegates from diverse geographic regions at the OMERACT Remission in RA Patient Perspective Special Interest Group (SIG) meeting, February 2024
- Participants
- 40 SIG delegates
Methodological detailsOMERACT SIG, scoping review and international focus groups, consensus discussion and vote
- OMERACT SIG
- Scoping review and international focus groups
- Consensus discussion and vote
Recommendations
As reported in the abstract
- Preliminary definition of independence presented: "Being able to do what you want, when you want, in the way you want to do it."
- Delegates emphasized capturing all aspects of independence; adjustments to the definition were suggested; some requested more specificity before taking it forward
- Issues raised on whether cultural variation in concepts of independence (e.g. support as social belonging and interdependence) was adequately captured
- Majority of delegates voted in favour of continuing work toward defining targeted sub-domains, to develop an instrument assessing independence in RA remission
Original publication
Towards the development of a definition of independence for individuals diagnosed with rheumatoid arthritis in remission: an 'OMERACT remission in rheumatoid arthritis patient perspective’ special interest group report. Semin Arthritis Rheum. Published 16 February 2026. doi:10.
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