Rheumatoid arthritis

Measuring independence from the patient perspective in rheumatoid arthritis remission: a scoping literature review of existing instruments by the OMERACT patient perspective of rheumatoid arthritis (RA) remission group

Semin Arthritis RheumPublished Scoping literature review

Authors' conclusion

Most studies evaluated instruments measuring "being physically and functionally able" and "participation beyond function". No studies tested instruments addressing all the themes of independence in the context of RA remission.

Study context

Population
Adults with rheumatic and musculoskeletal diseases; publications 12/12/2004 to 12/17/2024 developing or validating instruments measuring independence and/or its five components
Participants
75 studies
Outcome
Instruments measuring independence and/or its five components (being physically and functionally able, participation beyond function, cognitive independence, autonomy, assistance)
Methodological detailssystematic search of PubMed, Embase and Cochrane, AI-assisted data extraction with manual checking, thematic synthesis, 2818 abstracts identified; 75 studies included (30 cross-sectional, 19 cohort, 8 randomized trials, 5 qualitative)
  • Systematic search of PubMed, Embase and Cochrane
  • AI-assisted data extraction with manual checking
  • Thematic synthesis
  • 2818 abstracts identified; 75 studies included (30 cross-sectional, 19 cohort, 8 randomized trials, 5 qualitative)

Main finding

As reported in the abstract

Themes of independence addressed by included studies
Studies addressing "being physically and functionally able"
71
Studies addressing "participation beyond function"
53
Studies addressing assistance
28
Studies addressing cognitive independence
19
Studies addressing autonomy
16
Instruments measuring all five themes (none studied in RA remission)
3

Original publication

Measuring independence from the patient perspective in rheumatoid arthritis remission: a scoping literature review of existing instruments by the OMERACT patient perspective of RA remission group. Semin Arthritis Rheum. Published 18 August 2026. doi:10.1016/j.semarthrit.2026.153059

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