Lupus & antiphospholipid syndrome
The Type 1 & 2 systemic lupus erythematosus model: Perspectives of people living with systemic lupus erythematosus
Authors' conclusion
We demonstrated content and face validity of the Type 1 & 2 SLE model with people living with SLE. Participants in our study largely understood the model and felt it accurately reflected their experience living with SLE.
Study context
- Population
- People living with systemic lupus erythematosus (SLE) who met classification criteria for SLE
- Participants
- 42 people
- Outcome
- Content and face validity of the Type 1 & 2 SLE model
Methodological detailssemi-structured interviews, purposeful sample, applied thematic analysis
- Semi-structured interviews
- Purposeful sample
- Applied thematic analysis
Main finding
As reported in the abstract
- Type 2 SLE symptoms (e.g. pain, fatigue) very common; almost all participants experienced some Type 2 symptoms at some point during their disease course
- Type 1 SLE symptoms described as acute flares and life-threatening; Type 2 symptoms as "everyday lupus" affecting daily lives and a dominant part of the SLE disease experience
- Most participants want their rheumatologists to discuss Type 2 symptoms during clinical appointments
Original publication
The Type 1 & 2 systemic lupus erythematosus model: Perspectives of people living with systemic lupus erythematosus. Lupus. Published 18 January 2024. doi:10.
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