Lupus & antiphospholipid syndrome
The experience and implications of pain in systemic lupus erythematosus: A qualitative interview study focusing on the patient’s perspective
Authors' conclusion
This study provides comprehensive insights into the nature and multifaceted impact of SLE-related pain in different dimensions of the informants' daily lives.
Study context
- Population
- Patients with systemic lupus erythematosus (SLE) who previously reported high SLE-related pain intensity ≥40 mm (0–100 mm) on one or two occasions
- Participants
- 20 patients
- Outcome
- Patients' experiences and implications of SLE-related pain in daily life and support requested from healthcare providers
Methodological detailsindividual semi-structured interviews, content analysis
- Individual semi-structured interviews
- Content analysis
Main finding
As reported in the abstract
- Four main categories and 13 generic categories identified
- Pain multifaceted: longstanding, unpredictable, migrating, with various physical sensations
- Multidimensional consequences: restricted everyday life, interfered with roles and relationships, caused various emotions incl. existential thoughts
- Coping strategies: inner resources, support from family and significant others, pharmaceuticals and relieving treatments
- Need for security and acknowledgement: individualized support and accessibility of healthcare
Original publication
The experience and implications of pain in systemic lupus erythematosus: A qualitative interview study focusing on the patient’s perspective. Lupus. Published 17 September 2024. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →