The Dermatomyositis Disease Symptom Questionnaire (DM-DSQ): A Measure to Assess the Patient Experience of Dermatomyositis Symptoms
Authors' conclusion
Preliminary results indicate its content validity
Study context
- Population
- Individuals with dermatomyositis (DM) (aged ≥ 18 yrs) in the US
- Participants
- 30 individuals
- Outcome
- Concept elicitation and cognitive debriefing of the DM-DSQ
Methodological detailsobservational, semistructured interviews, concept elicitation and cognitive debriefing, saturation analysis
- Observational
- Semistructured interviews
- Concept elicitation and cognitive debriefing
- Saturation analysis
Main finding
As reported in the abstract
- Concept elicitation findings included disease symptoms (eg, muscle weakness) and functional impacts (eg, walking)
- Conceptual saturation achieved; the first 5 interviews uncovered most of the concepts
- Participants found the items relevant, comprehensive, and easily understood (except for "skin sensitivity in sunlight")
- Revised DM-DSQ content appears preliminarily valid in the patient population surveyed
Observational data: associations, not effects.
Original publication
The Dermatomyositis Disease Symptom Questionnaire (DM-DSQ): A Measure to Assess the Patient Experience of Dermatomyositis Symptoms. J Rheumatol. Published 1 August 2024. doi:10.
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