Sjögren's disease & overlap diseases
Six medico-psycho-social dimensions of a pedagogical model used to define clusters of patients with Sjögren's syndrome and intentionality to participate in a patient education programme
Authors' conclusion
A cluster of patients appeared to present more impact of the disease and more intentionality to participate in a programme of PE.
Study context
- Population
- Patients with Sjögren's Syndrome (SS) followed in the Department of Internal Medicine, University Hospital of Lille, Franceof 408 invited (31%)
- Participants
- 127 patients
- Outcome
- Medico-psycho-social characteristics defining the six spheres of an allosteric educational model, to characterise clusters of patients with SS and intentionality to participate in a PE programme
Methodological detailsself-administered questionnaire, cluster analysis, single-centre
- Self-administered questionnaire
- Cluster analysis
- Single-centre
Main finding
As reported in the abstract
Women
96%
Median age, years
51
±14.5
Two clusters individualised; one cluster with higher global disease impact (more severe perceptual, emotional and infra-cognitive sphere scores, worse physical quality of life (QoL)) and higher intentionality to participate in patient education (PE), n (%)
75
59%
Observational data: associations, not effects.
Further findings
Factors associated with intentionality to participate in a PE programme
- Patients with intentionality were significantly younger, had shorter disease duration, more frequently disabled status, more fatigue, more self-reported symptoms and poorer QoL
Cognitive sphere (knowledge of the disease) between the two clusters
- No difference between the two groups
Original publication
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