Real-world psychosocial impact among patients with juvenile idiopathic arthritis and families in Spain
Authors' conclusion
Most of the patients had a high HRQoL and had controlled disease activity, despite having a negative psychosocial impact on some of them and their families, mainly on school functioning. Children's disease seems to involve greater work and psychosocial impacts for mothers than for fathers of children affected by JIA.
Study context
- Population
- Children with moderate-severe juvenile idiopathic arthritis (JIA) treated with at least one anti-TNF-α (biologic disease-modifying antirheumatic drugs (bDMARD)), previously in the ITACA study, three tertiary-care hospitals in Spain, and their caregivers
- Participants
- 107 children
- Outcome
- Psychosocial impact of JIA on patients and families: HRQoL (PedsQL), school and social participation, impact on caregivers' jobs and social life, perceived psychosocial support
Methodological detailsobservational, multicentric, retrospective, 24-month
- Observational
- Multicentric
- Retrospective
- 24-month
Main finding
As reported in the abstract
- Patients and parents referred a high health-related quality of life (HRQoL) (PedsQL)
- School Functioning PedsQL domain achieved the lowest score
- Work and social impact of the child's disease greater for mothers than for fathers
- Understanding of the disease lower at school than in family and friends' environments
Observational data: associations, not effects.
Further findings
Disease activity, function and treatment
- Receiving drug treatment
- 94.4%
- bDMARD in monotherapy
- 84.5%
- Inactive disease or low disease activity (JADAS-71) and very low functional disability (CHAQ)
Original publication
Real-world psychosocial impact among patients with juvenile idiopathic arthritis and families in Spain. Pediatr Rheumatol Online J. Published 26 November 2024. doi:10.
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