Perspectives and experiences of parents of children with juvenile dermatomyositis: a semi-structured interview study
Authors' conclusion
The diagnosis of JDM is often delayed and caregivers of children with JDM report distress, disruption and uncertainty throughout their treatment journey with their child.
Study context
- Population
- Parents of children aged 8 to 21 with Juvenile Dermatomyositis (JDM), three centres in Australia15 mothers
- Participants
- 19 parents
- Outcome
- Themes of parents' experiences
Methodological detailssemi-structured interviews (face-to-face, telephone), thematic analysis, multicentre (three centres)
- Semi-structured interviews (face-to-face, telephone)
- Thematic analysis
- Multicentre (three centres)
Main finding
As reported in the abstract
Six themes identified
6
Original publication
Perspectives and experiences of parents of children with juvenile dermatomyositis: a semi-structured interview study. Pediatr Rheumatol Online J. Published 28 March 2025. doi:10.
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