Pediatric rheumatology

Pediatric Rheumatology Care and Outcomes Improvement Network's Quality Measure Set to Improve Care of Children With Juvenile Idiopathic Arthritis

Arthritis Care Res (Hoboken)Published Quality measure development and implementation study

Authors' conclusion

PR-COIN has developed and tested JIA QMs to assess clinical performance and patient outcomes.

Study context

Population
Children with juvenile idiopathic arthritis (JIA) in Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN), a multihospital learning health network, since 2011
Outcome
JIA quality measure set
Methodological detailsmultihospital learning health network, multistakeholder process, quality improvement methods, registry data, Initial process quality measures (QMs) selected by an ACR-endorsed multistakeholder process; outcome QMs selected by PR-COIN clinicians and parents of children with JIA, Operational definitions developed by a committee of rheumatologists and data analysts; QMs programmed and validated using patient data, Measures populated by registry data; performance displayed on automated statistical process control charts, Centers use rapid-cycle quality improvement; QMs revised for usefulness, best practices and network initiatives
  • Multihospital learning health network
  • Multistakeholder process
  • Quality improvement methods
  • Registry data
  • Initial process QMs selected by an ACR-endorsed multistakeholder process; outcome QMs selected by PR-COIN clinicians and parents of children with JIA
  • Operational definitions developed by a committee of rheumatologists and data analysts; QMs programmed and validated using patient data
  • Measures populated by registry data; performance displayed on automated statistical process control charts
  • Centers use rapid-cycle quality improvement; QMs revised for usefulness, best practices and network initiatives

Main finding

As reported in the abstract

Initial QM set: process measures (standardized measurement of disease activity, collection of patient-reported outcome assessments, clinical performance measures)

13

Revised QM set: measures, including additional measures of disease activity, data quality and a balancing measure

20

Observational data: associations, not effects.

Original publication

Pediatric Rheumatology Care and Outcomes Improvement Network's Quality Measure Set to Improve Care of Children With Juvenile Idiopathic Arthritis. Arthritis Care Res (Hoboken). Published 13 July 2023. doi:10.1002/acr.25168

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