Pediatric Rheumatology Care and Outcomes Improvement Network's Quality Measure Set to Improve Care of Children With Juvenile Idiopathic Arthritis
Authors' conclusion
PR-COIN has developed and tested JIA QMs to assess clinical performance and patient outcomes.
Study context
- Population
- Children with juvenile idiopathic arthritis (JIA) in Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN), a multihospital learning health network, since 2011
- Outcome
- JIA quality measure set
Methodological detailsmultihospital learning health network, multistakeholder process, quality improvement methods, registry data, Initial process quality measures (QMs) selected by an ACR-endorsed multistakeholder process; outcome QMs selected by PR-COIN clinicians and parents of children with JIA, Operational definitions developed by a committee of rheumatologists and data analysts; QMs programmed and validated using patient data, Measures populated by registry data; performance displayed on automated statistical process control charts, Centers use rapid-cycle quality improvement; QMs revised for usefulness, best practices and network initiatives
- Multihospital learning health network
- Multistakeholder process
- Quality improvement methods
- Registry data
- Initial process QMs selected by an ACR-endorsed multistakeholder process; outcome QMs selected by PR-COIN clinicians and parents of children with JIA
- Operational definitions developed by a committee of rheumatologists and data analysts; QMs programmed and validated using patient data
- Measures populated by registry data; performance displayed on automated statistical process control charts
- Centers use rapid-cycle quality improvement; QMs revised for usefulness, best practices and network initiatives
Main finding
As reported in the abstract
Initial QM set: process measures (standardized measurement of disease activity, collection of patient-reported outcome assessments, clinical performance measures)
13
Revised QM set: measures, including additional measures of disease activity, data quality and a balancing measure
20
Observational data: associations, not effects.
Original publication
Pediatric Rheumatology Care and Outcomes Improvement Network's Quality Measure Set to Improve Care of Children With Juvenile Idiopathic Arthritis. Arthritis Care Res (Hoboken). Published 13 July 2023. doi:10. 1002/ acr. 25168
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