Sjögren's disease & overlap diseases
Patients’ perspectives of living with Sjögren disease: A systematic review of qualitative studies from the OMERACT Sjögren disease working group
Authors' conclusion
SjD patients encounter a large variety of individual experiences in their illness that have important repercussions on quality of life.
Study context
- Population
- Adults (≥ 18 years) with sjögren disease (SjD) per 2002 American-European Consensus or 2016 ACR/EULAR criteria; primary qualitative literature (interviews and/or focus groups) in English
- Participants
- 162 adults9 studies
- Outcome
- Key themes of lived experience of SjD
Methodological detailsthematic analysis (Thomas and Harden approach)
- Thematic analysis (Thomas and Harden approach)
Pooled result
As reported in the abstract
- Burden of physical symptoms (such as sicca)
- Social isolation
- Negative impact on function
- Unpredictability of the disease
- Diverse coping strategies
- Challenges of navigating the healthcare system
Further pooled results
Study and participant characteristics
- Manuscripts fulfilling selection criteria of 1990 screened
- 9 (0.5 %)
- Female participants
- 154, 95 %
- Countries
- 10
Bias in recruitment or analyses
- Few studies addressed any bias in the recruitment of patients or analyses of data
Original publication
Patients’ perspectives of living with Sjögren disease: A systematic review of qualitative studies from the OMERACT Sjögren disease working group. Semin Arthritis Rheum. Published 22 January 2026. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →