Patients’ and parents’ satisfaction to improve patient care in JIA: factors determining acceptable symptom state measured with juvenile arthritis multidimensional assessment report (JAMAR)
Authors' conclusion
Our data highlight the importance of patients' and parents' opinions in the evaluation of disease activity, and support their integration into the shared decision-making in daily clinical practice to improve the quality of medical care.
Study context
- Population
- JIA patients and their parents in a tertiary centre who completed the JAMAR
- Participants
- 239 vs 238
- Exposure
- Patients vs Parents
- Patientsn = 239
- Parentsn = 238
- Outcome
- Positive JA-CASS (patients) and JA-PASS (parents)
Methodological detailssingle-centre (tertiary centre), multivariable logistic regression
- Single-centre (tertiary centre)
- Multivariable logistic regression
Main finding
As reported in the abstract
Satisfied with current condition (positive JA-CASS / JA-PASS)
- Patients: shorter duration of morning stiffness associated with JA-CASS
- P = 0.001
- Patients: lower age at disease onset
- P = 0.044
- Patients: longer disease duration
- P = 0.009
- Patients: higher rating of well-being (visual analogue scale (VAS))
- P = 0.004
- Parents: current state of persistent activity
- P = 0.002
- Parents: relapse
- P < 0.005
- Parents: problems at school
- P = 0.002
- Parents: Quality of life (QoL) items
- P = 0.005
Observational data: associations, not effects.
Original publication
Patients’ and parents’ satisfaction to improve patient care in JIA: factors determining acceptable symptom state measured with JAMAR. Rheumatology (Oxford). Published 14 December 2022. doi:10.
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