Patient perspectives on long-term outcomes in rheumatoid arthritis. A qualitative study from the OMERACT patient outcomes in longitudinal studies working group
Authors' conclusion
We identified six domains of importance to people with RA that are seldom measured in longitudinal registries and should be considered in patient-centered longitudinal studies.
Study context
- Population
- Patients with rheumatoid arthritis (RA) with at least five years of disease duration, from the United States, Italy, Spain, Mexico and Argentina24 women
- Participants
- 28 patients
- Outcome
- Patient-centered domains with long-term relevance to people with RA
Methodological detailssemi-structured individual cognitive interviews, qualitative content analysis, constructivist/interpretivist theoretical framework, five countries
- Semi-structured individual cognitive interviews
- Qualitative content analysis
- Constructivist/interpretivist theoretical framework
- Five countries
Main finding
As reported in the abstract
Main themes of daily life with RA
Six main themes generated
6
Further findings
Contextual factors impacting long-term outcomes
- Attitudes towards disease, social support, or financial burdens
Original publication
Patient perspectives on long-term outcomes in rheumatoid arthritis. A qualitative study from the OMERACT patient outcomes in longitudinal studies working group. Semin Arthritis Rheum. Published 19 May 2022. doi:10.
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