Pediatric rheumatology

Paint me a picture: illustrating the psychosocial impact of different juvenile idiopathic arthritis categories

Rheumatology (Oxford)Published Registry cohort study

Authors' conclusion

JIA psychosocial impact was most severe at diagnosis, varied by JIA category, and improved by 1 year for many children, but few patients showed persisting or worsening JIA impact. Physical disability, fatigue, and pain interference were independently associated with psychosocial impact.

Study context

Population
Children with JIA enrolled in the Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI) registry within three months of diagnosispatients included
Participants
1,072 children
Exposure
JIA categories; scores at enrollment and one year
Outcome
JAQQ-psychosocial (1=nil to 7=severe), median
Follow-up
Enrollment
Methodological detailspatients enrolled within three months of diagnosis, hierarchical clustering, Spearman correlation and linear regression
  • Patients enrolled within three months of diagnosis
  • Hierarchical clustering
  • Spearman correlation and linear regression

Main finding

As reported in the abstract

RF+ polyarthritis

3.2

median · IQR 1.8–4.4

Oligoarthritis

1.8

median · IQR 1–3

Observational data: associations, not effects.

Further findings

Change in JAQQ-psychosocial from enrollment · one year

Scores improved significantly for RF+ and RF- polyarthritis, psoriatic and systemic arthritis
P < 0.05
  • Wilcoxon ranked-sum tests

Clustering of JAQQ-psychosocial items

Items clustered into externalizing behaviours, internalizing behaviours, and school-related problems

Heatmap clusters of JIA psychosocial impact (share of patients)

Mild
51.0%
Moderate
30.6%
Severe
9.3%
Very severe
9.1%
  • Proportions in each cluster varied by JIA category

Course of psychosocial impact · 1 year

Most patients improved; few patients in each category had persisting or worsening psychosocial impact

Factors associated with JAQQ-psychosocial scores · enrollment

Physical disability, fatigue, and pain interference independently associated with scores

Original publication

Paint me a picture: illustrating the psychosocial impact of different juvenile idiopathic arthritis categories. Rheumatology (Oxford). Published 2 November 2026. doi:10.1093/rheumatology/keag618

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