Spondyloarthritis & psoriatic arthritis
Optimizing the use of patient-reported outcome measures in axial spondyloarthritis: a mixed-methods study from the QUESTIONAX Project
Authors' conclusion
Although PROMs are valuable tools in axSpA, their effective use is limited by barriers related to comprehension and implementation.
Study context
- Population
- Patients with axial spondyloarthritis (axSpA) and healthcare professionals (QUESTIONAX Project)
- Outcome
- Use and understanding of existing PROMs (BASDAI, BASFI, ASAS-HI, disease-activity NRS) in axSpA
Methodological detailscognitive interviews, semi-structured interviews, online surveys, Qualitative data analysed descriptively to identify recurring themes and patterns
- Cognitive interviews
- Semi-structured interviews
- Online surveys
- Qualitative data analysed descriptively to identify recurring themes and patterns
Main finding
As reported in the abstract
- Patients completed patient-reported outcome measures (PROMs) frequently but had limited understanding of their purpose, scoring and relevance to clinical decision-making
- Certain BASDAI items, particularly those on peripheral pain, caused confusion
- ASAS-HI less familiar; concerns about clarity and relevance
- Healthcare professionals generally familiar with PROMs but reported inconsistent use, mainly due to time constraints and difficulties interpreting scores
- Both groups highlighted need for clearer instructions, improved formatting and better integration into clinical workflows
Original publication
Optimizing the use of patient-reported outcome measures in axial spondyloarthritis: a mixed-methods study from the QUESTIONAX Project. Semin Arthritis Rheum. Published 27 June 2026. doi:10.
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