Lupus & antiphospholipid syndrome
OMERACT systemic lupus erythematosus domain survey
Authors' conclusion
The domain inclusion and importance results demonstrate that patients and collaborators prioritize different domains, so capturing the perspectives of both groups is essential to ensure a holistic assessment of SLE.
Study context
- Population
- Patients with Systemic Lupus Erythematosus (SLE) at the University of Toronto Lupus Clinic and OMERACT SLE Working Group members, August 2022–February 2023175 patients and 178 collaborators invited
- Participants
- 100 vs 145
- Exposure
- Patients with SLE vs collaborators
- Patientn = 100
- Collaboratorn = 145
- Outcome
- Prioritisation of candidate SLE domains
Methodological detailsOMERACT SLE Working Group
- OMERACT SLE Working Group
Main finding
As reported in the abstract
- Patients tended to prioritize life-impact domains while collaborators prioritized clinical domains
- Both patients and collaborators recommended additional domains to those in the 1998 SLE Core Outcome Set (COS) and research agenda
Observational data: associations, not effects.
Original publication
OMERACT systemic lupus erythematosus domain survey. Semin Arthritis Rheum. Published 24 July 2024. doi:10.
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