Involving patients as research partners in research in rheumatology: a literature review in 2023
Authors' conclusion
Despite a worldwide movement advocating for increased patient involvement in research, PRPs in translational research and RCTs in rheumatology are significantly under-represented.
Study context
- Population
- 80 most recent articles on RA, PsA, SLE and lower extremity OA (20 per disease), published up until 1 March 2023 in rheumatology and general scientific journals
- Participants
- 80 articles
- Comparison
- Translational studies vs randomised clinical trials (RCTs)
- Translational studiesn = 40
- RCTsn = 40
- Outcome
- Extent of PRP involvement
Methodological detailsdescriptive analyses
- Descriptive analyses
Main finding
As reported in the abstract
Reported PRP involvement
Translational studies
0
events
RCTs
20%
8 of 40
Further findings
Characteristics of RCTs reporting PRP involvement
- From Europe
- 75%
- From North America
- 25%
- Non-industry funded
- 75%
- Type of PRP involvement reported
- 6 of 8
- PRP participation in study or intervention design
- 6
- PRP participation in interpretation of results
- 2
- Trials reporting number of patient research partners (PRPs) (all involved at least two PRPs)
- 75%
Original publication
Involving patients as research partners in research in rheumatology: a literature review in 2023. RMD Open. Published 23 November 2023. doi:10.
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