In clinical hand osteoarthritis research, self-reported pain questionnaires do not reflect the patient experience
Authors' conclusion
Changes in repeatedly measured AUSCAN pain often differ from the recalled course of pain over the same period.
Study context
- Population
- Patients with hand osteoarthritis (OA) from the HOSTAS cohort and HOPE trial708 HOSTAS and 86 HOPE intervals
- Participants
- 307 vs 86
- Comparison
- Changes in AUSCAN pain vs recalled pain
- HOSTASn = 307
- HOPEn = 86
- Primary endpoint
- Concordance between changes in AUSCAN pain (improved ≤−1, stable, worsened ≥1) and a recall question (Cohen's kappa, percentage agreement)
Methodological detailsgeneralized estimating equations
- Generalized estimating equations
Primary result
As reported in the abstract
Concordance of AUSCAN pain change with recalled pain
| Group | Value | Cohen's kappa |
|---|---|---|
| HOSTAS | 42% | 0.13 |
| HOPE | 47% | 0.14 |
Value
HOSTAS42%
HOPE47%
Cohen's kappa
HOSTAS0.13
HOPE0.14
Further findings
Most frequent recall answer
Most frequent recall answer
- Worsened pain in HOSTAS; improved pain in HOPE
- In both studies, AUSCAN pain most frequently improved
Association of depression and anxiety with concordance
- Depression and anxiety showed no association with concordance
Original publication
In clinical hand osteoarthritis research, self-reported pain questionnaires do not reflect the patient experience. Rheumatology (Oxford). Published 21 January 2025. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →