“I’m in pain, and I’m not faking it”: A qualitative exploration of the reactions of youth with juvenile idiopathic arthritis and their caregivers to pain-related stigma
Authors' conclusion
Pain-related stigma can impact youth with JIA and their caregivers in various ways, with some reactions being protective of their health and well-being.
Study context
- Population
- Youth aged 15–19 years with juvenile idiopathic arthritis (JIA) and their caregivers
- Participants
- 10 vs 12
- Comparison
- Youth vs Caregivers
- Youthn = 10
- Caregiversn = 12
- Outcome
- Situational and enduring reactions of youth with JIA and their caregivers to pain-related stigma
Methodological detailssemi-structured interviews, reflexive thematic analysis, triangulation, matrix analysis
- Semi-structured interviews
- Reflexive thematic analysis
- Triangulation
- Matrix analysis
Main finding
As reported in the abstract
Five meta-themes
5
Original publication
“I’m in pain, and I’m not faking it”: A qualitative exploration of the reactions of youth with juvenile idiopathic arthritis and their caregivers to pain-related stigma. Arthritis Res Ther. Published 15 October 2025. doi:10.
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