Identification of idiopathic inflammatory myopathy research cohorts using international classification of disease (ICD) codes: A systematic review
Authors' conclusion
The highest PPV's are reported for DM and PM with the use of multiple coding instances, or those instances associated with inpatient admission.
Study context
- Population
- Studies validating ICD-9 and/or −10 coding for idiopathic inflammatory myopathies (IIM) case identification, focusing on dermatomyositis (DM) and polymyositis (PM)11 articles
- Outcome
- Validation of ICD coding for IIM
Pooled result
As reported in the abstract
Studies with PPV of 0.9 or higher
4
Of these, coding associated with inpatient admission
2
Of these, at least 2 codes (710.3) 3 months apart required
1
Further pooled results
Characteristics of included studies
- Citations screened
- 3684
- Full-text publications reviewed
- 69
- ICD-9 only
- 5
- ICD-10 only
- 5
- Both ICD-9 and ICD-10
- 1
- Population-based studies in Europe
- 4
- Population-based studies in Canada
- 1
- Reference standard Bohan and Peter
- 5
- Reference standard 2017 EULAR/ACR classification
- 2
- Reference standard expert opinion
- 3
- Reference standard enrollment in Rheumatology Quality Register
- 1
- Reference standard muscle biopsy
- 1
- All but one US study were single centre
Original publication
Identification of idiopathic inflammatory myopathy research cohorts using international classification of disease (ICD) codes: A systematic review. Semin Arthritis Rheum. Published 17 September 2025. doi:10.
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