Vasculitis & polymyalgia rheumatica
Exploring Reproductive Experiences With Women Enrolled in the International Vasculitis Pregnancy Registry
Authors' conclusion
When making decisions about pregnancy, women of reproductive age with vasculitis used multiple resources. Patients consistently valued their medical provider's opinion over alternative sources of information. To ensure comprehensive medical care, half of women relied on self-advocacy to coordinate communication among subspecialists. Most women had pregnancies that resulted in live births with delivery at term.
Study context
- Population
- Women with vasculitis who had experienced pregnancy, registered in the Vasculitis Pregnancy Registry (VPREG)10 AAV, 4 TAK, 2 BD, 1 IgAV, 1 RP
- Participants
- 18 women
- Outcome
- Reproductive experiences (thematic analysis)
Methodological detailssemi-structured interviews, thematic analysis, online patient-reported registry (VPREG)
- Semi-structured interviews
- Thematic analysis
- Online patient-reported registry (VPREG)
Main finding
As reported in the abstract
- Women sought information from various sources, incl. social media; physicians' and family members' opinions most influential
- Patients more likely than providers to initiate family-planning conversations
- Balancing differing subspecialist opinions was challenging; many patients acted as liaison between physicians during pregnancy
- Need for self-advocacy was a common experience
Observational data: associations, not effects.
Further findings
Pregnancy outcomes
- Most women had pregnancies resulting in live births with delivery at term
Original publication
Exploring Reproductive Experiences With Women Enrolled in the International Vasculitis Pregnancy Registry. J Rheumatol. Published 1 June 2024. doi:10.
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