Systemic sclerosis & Raynaud's

Development of a tool to map SSc pain sources, characteristics and management experiences: the SPIN Pain Assessment Tool

Rheumatology (Oxford)Published Tool development study

Authors' conclusion

The SPIN pain assessment tool includes critical information on pain sources important to people with SSc.

Study context

Population
People living with SSc and healthcare providers who care for people with SSc22 nominal group technique (NGT) participants
Outcome
Development of the SPIN pain assessment tool
Methodological detailspatient partnership (4-member Patient Advisory Team), nominal group technique sessions, healthcare provider feedback, individual usability testing
  • Patient partnership (4-member Patient Advisory Team)
  • Nominal group technique sessions
  • Healthcare provider feedback
  • Individual usability testing

Main finding

As reported in the abstract

NGT sessions conducted (five English, one French)
6
NGT participants
22
Healthcare providers giving feedback
18
Individual usability testing sessions
5
Final tool: items on pain sources (plus an 'other' category)
18
Final tool: questions per pain source on intensity and interference, temporality and predictability, sensory experience and management
12

Original publication

Development of a tool to map SSc pain sources, characteristics and management experiences: the SPIN Pain Assessment Tool. Rheumatology (Oxford). Published 24 January 2026. doi:10.1093/rheumatology/keag039

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