Lupus & antiphospholipid syndrome
Advanced practice nursing and nurse-led models in systemic lupus erythematosus: A patient organisation-informed narrative review
Authors' conclusion
SLE services should formalise advanced rheumatology nursing roles and nurse-led models as part of routine care, with clear governance and escalation processes. Future research should standardise role descriptions and outcomes and evaluate scalable nurse-led models on patient-centred, service, and equity endpoints.
Study context
- Population
- Peer-reviewed articles describing nurse-led interventions, service models, or advanced nursing roles involving people with systemic lupus erythematosus (SLE)articles published between 2016 and 2025 included, of 376 records
- Participants
- 9 participants
- Outcome
- Included articles
Methodological detailsthematic analysis
- Thematic analysis
Main finding
As reported in the abstract
- Articles that addressed pediatric care
- one
Further findings
Format of nurse-led activity
- Most often delivered in outpatient and hybrid (in-person/telephone) formats
Main themes synthesised
- Care coordination and continuity as the "backbone"
- Education and counselling to strengthen self-management and self-efficacy
- Symptom and lifestyle management as central outcomes
- Psychosocial needs and social determinants as part of care
- Advanced competence, training, and variable "visibility" of nursing roles
Original publication
Advanced practice nursing and nurse-led models in systemic lupus erythematosus: A patient organisation-informed narrative review. Lupus. Published 3 November 2026. doi:10.
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