Vasculitis & polymyalgia rheumatica

Accuracy of self-reported diagnoses of polymyalgia rheumatica and giant cell arteritis in the French prospective E3N- EPIC cohort: A validation study

Semin Arthritis RheumPublished Validation study

Authors' conclusion

The accuracy of self-reported diagnosis of GCA/PMR was high in the E3N-cohort but using additional data as a specific GCA/PMR questionnaire and/or corticosteroid reimbursement database further improved this accuracy.

Study context

Population
French women born 1925–1950 in the E3N-EPIC cohort, recruited in 1990202 provided medical charts
Participants
98,995 women
Comparison
Self-reported giant cell arteritis (GCA)/polymyalgia rheumatica (PMR) diagnoses and four algorithms vs blinded medical chart review
  • Self-reportn = 1,392
  • Medical chart reviewn = 202reference
Outcome
Accuracy of self-reported GCA/PMR diagnoses vs blinded medical chart review
Methodological detailspopulation-based prospective cohort, blinded medical chart review, 830 women returned the specific questionnaire
  • Population-based prospective cohort
  • Blinded medical chart review
  • 830 women returned the specific questionnaire

Performance

As reported in the abstract

Accuracy of self-reported GCA/PMR diagnoses
Test or modelValueAccuracy
Self-report87.6 %87.6 %
Algorithms91.8 % to 92.8 %91.8 % to 92.8 %

Value

Self-report87.6 %
Algorithms91.8 % to 92.8 %

Accuracy

Self-report87.6 %
Algorithms91.8 % to 92.8 %

Original publication

Accuracy of self-reported diagnoses of polymyalgia rheumatica and giant cell arteritis in the French prospective E3N- EPIC cohort: A validation study. Semin Arthritis Rheum. Published 17 November 2023. doi:10.1016/j.semarthrit.2023.152298

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