Lupus & antiphospholipid syndrome
The lived experiences of woman navigating university with lupus and their primary support persons
Authors' conclusion
Women with lupus who are navigating university endure unique challenges in addition to school-related demands. Similarly, primary support persons who assisted throughout this navigation period encountered several individual and situational hardships due to the nature of lupus.
Study context
- Population
- Women with lupus navigating university/college and their primary support persons, Southern Ontario
- Participants
- 10 women
- Comparison
- Women with lupus vs Primary support persons
- Women with lupusn = 5
- Primary support personsn = 5
- Outcome
- Salient themes of lived experience
Methodological detailsone-on-one semi-structured interviews, reflexive thematic analysis
- One-on-one semi-structured interviews
- Reflexive thematic analysis
Main finding
As reported in the abstract
- Theme 1, Lupus is a part of me: lupus part of everyday life, becoming the new normal after symptom onset
- Theme 2, Lupus does not exist in a bubble: ongoing challenges for individuals and support persons due to lack of knowledge in healthcare, education and society
- Each theme with associated sub-themes
Original publication
The lived experiences of woman navigating university with lupus and their primary support persons. Lupus. Published 17 June 2026. doi:10.
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