Self-evidence-based digital care programme improves health-related quality of life in adults with a variety of autoimmune diseases and long COVID: a retrospective study
Authors' conclusion
An evidence-based DCP that uses patient data to help identify hidden symptom triggers and guide personalised dietary and other non-pharmacological interventions was associated with a high level of engagement and adherence and statistically significant, clinically meaningful improvements in HRQoL. Those with the least favourable PROMIS scores at BL experienced the greatest improvements.
Study context
- Population
- Adults (17–82 years) with a variety of autoimmune diseases and long COVID who participated in the digital care programme (DCP) between April 2020 and June 2022, with baseline (BL) and end-of-programme (EOP) Patient-Reported Outcomes Measurement Information System (PROMIS) scoresRA 20.1%
- Participants
- 202 adults
- Exposure
- End of digital care programme vs baseline
- DCPn = 202
- Outcome
- Change in health-related quality of life (HRQoL) (PROMIS standardised T-scores) from BL to EOP
- Follow-up
- End of programme
Methodological detailssingle-group, pre-post (BL to EOP)
- Single-group
- Pre-post (BL to EOP)
Main finding
As reported in the abstract
HRQoL change BL to EOP, 10 PROMIS domains
- Statistically significant improvements in all 10 PROMIS domains analysed
Observational data: associations, not effects.
Further findings
Engagement and adherence
- Observations entered, average per day
- 7.6 times/day
- Programme days with observations entered, average
- 86%
- Coach sessions attended, average
- 14
- Time to complete programme, average
- 17.2 weeks
PROMIS domains in individuals with higher severity of compromise at BL (subgroup) · EOP
- Greater average improvements than all-comers in all 10 PROMIS domains
Original publication
Self-evidence-based digital care programme improves health-related quality of life in adults with a variety of autoimmune diseases and long COVID: a retrospective study. RMD Open. Published 16 May 2023. doi:10.
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