Recruitment rate comparison between a virtual tele-research cohort and a traditional centre-based cohort in idiopathic inflammatory myopathy
Authors' conclusion
The decentralized TRC demonstrated higher recruitment and enrolment, with similar compliance and retention rates compared with CBC.
Study context
- Population
- Patients with idiopathic inflammatory myopathy (IIM) (myositis), USA (Myositis Patient Centered Research (MyPacer) study)120 enrolled
- Participants
- 781 vs 60
- Exposure
- Decentralized telemedicine-based research cohort vs traditional centre-based cohort
- TRCn = 781
- Centre-based cohort (CBC)n = 60reference
- Outcome
- Recruitment, enrolment, retention and data completion
- Follow-up
- 6 months
Methodological detailsdecentralized telemedicine-based vs centre-based cohort comparison, same protocol in both cohorts, 6-month observation
- Decentralized telemedicine-based vs centre-based cohort comparison
- Same protocol in both cohorts
- 6-month observation
Main finding
As reported in the abstract
Recruitment and enrolment
TRC
781
events
CBC
60
events
P < 0.001
- TRC recruited 13 times faster than CBC
- 13
Observational data: associations, not effects.
Further findings
Screening success
P = 0.17
Dropout
P = 0.67
Compliance with study forms
P < 0.01
Characteristics of 120 enrolled (similar across cohorts)
- DM
- 52%
- Female
- 75%
- White
- 81%
- Mean age, years
- 55 ± 13.4
Original publication
Recruitment rate comparison between a virtual tele-research cohort and a traditional centre-based cohort in idiopathic inflammatory myopathy. Rheumatology (Oxford). Published 23 April 2025. doi:10.
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