Psychometric properties of patient-reported outcomes measurement information system (PROMIS) fixed short forms in Juvenile Myositis
Authors' conclusion
PROMIS measures show evidence of reliability and validity in JM. Child and parent reports differ sufficiently to suggest both should be collected.
Study context
- Population
- Children with juvenile myositis (JM) aged 8–17 and parents of JM patients aged 5–1775 JM participants enrolled
- Participants
- 57 vs 75
- Comparison
- Self-report vs Parent-proxy report
- Self-reportn = 57
- Parent-proxy reportn = 75
- Outcome
- Reliability and validity of PROMIS pediatric self-report and parent-proxy fixed short forms (Physical Function, Pain Interference, Fatigue, Emotional Distress)
Performance
As reported in the abstract
Reliability, agreement and validity of PROMIS measures
- Feasibility (completion)
- >96%
- Internal consistency reliability (Cronbach's alpha)
- >0.8
- Patient-parent agreement, Mobility, Upper Extremity, Fatigue (intraclass correlations (ICC); moderate)
- >0.5
- Patient-parent agreement, Pain Interference, Depressive Symptoms, Anxiety (ICC; smaller, as expected)
- 0.41-0.47
- Concurrent validity vs PedsQL-GC/-RM: moderate correlation (Spearman's rho) for all but 1 hypothesized relationships
- >0.5
Original publication
Psychometric properties of patient-reported outcomes measurement information system (PROMIS) fixed short forms in Juvenile Myositis. Semin Arthritis Rheum. Published 1 February 2025. doi:10.
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