Systemic sclerosis & Raynaud's
Patients’ unmet needs and treatment preferences concerning digital ulcers in systemic sclerosis
Authors' conclusion
Our data show that there is a large variation in DU treatment between countries. Patient access to specialist wound-care services is limited, and only a small proportion of patients had their DU needs met.
Study context
- Population
- Systemic sclerosis (SSc) patients invited through international patient associations and social mediaresponses from 34 countries
- Participants
- 358 patients
- Outcome
- Patients' perspectives and unmet needs concerning SSc digital ulcers
Methodological detailsonline survey, international
- Online survey
- International
Main finding
As reported in the abstract
- Respondents from US
- 65.6%
- Respondents from UK
- 11.5%
- Respondents from Canada
- 4.5%
- >10 digital ulcers (DUs)
- 46.1%
- 5-10 DUs
- 21.5%
- 1-5 DUs
- 28.5%
- 1 DU
- 3.9%
- Fingertip DUs (most frequent)
- 84.9%
- DUs overlying the IP joints
- 50.8%
- Received wound/ulcer care
- 51.7%
- Care provided by non-specialist wound care clinics
- 63.8%
- 'Very satisfied' or 'satisfied' that DU treatment relieved DU symptoms
- 24.6%
Observational data: associations, not effects.
Original publication
Patients’ unmet needs and treatment preferences concerning digital ulcers in systemic sclerosis. Rheumatology (Oxford). Published 2 March 2024. doi:10.
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