Patient research partner involvement in rheumatology research: a systematic literature review informing the 2023 updated EULAR recommendations for the involvement of patient research partners
Authors' conclusion
This SLR identified barriers and facilitators to PRP involvement, and was key to updating the European Alliance of Associations for Rheumatology recommendations for PRP-researcher collaboration based on scientific evidence.
Study context
- Population
- Articles on patient research partner (PRP) involvement in rheumatology research, published 2017–2023 (PubMed/Medline; websites in rheumatology and other specialties)of 1016 publications
- Participants
- 53 participants
- Outcome
- Barriers and facilitators to PRP involvement in rheumatology research
Methodological detailsqualitative thematic content analysis, descriptive quantitative analysis, quality assessment
- Qualitative thematic content analysis
- Descriptive quantitative analysis
- Quality assessment
Main finding
As reported in the abstract
Patient research partners (PRPs) reported/advised to be involved early in the project (% of articles)
32%
PRPs reported/advised to be involved in all research phases (% of articles)
30%
Further findings
Types of included articles
- Qualitative studies
- 26%
- Opinion articles
- 21%
- Meeting reports
- 17%
- Mixed-methods studies
- 11%
Roles of PRPs
- Ranged from research partners to patient advocates, advisors and patient reviewers
Original publication
Patient research partner involvement in rheumatology research: a systematic literature review informing the 2023 updated EULAR recommendations for the involvement of patient research partners. Ann Rheum Dis. Published 30 September 2024. doi:10.
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