Lupus & antiphospholipid syndrome
Patient Care Pathways for Pregnancy in Rare and Complex Rheumatic Diseases: Results From an International Survey
Authors' conclusion
In international referral centers, a high level of care is provided to patients with rcCTDs before, during, and after pregnancy. No significant discrepancies were found between European and non-European countries.
Study context
- Population
- Clinical centers of expertise caring for pregnant women with rare and complex connective tissue diseases (rcCTDs)centers in 21 countries
- Participants
- 69 participants
- Outcome
- Organizational care pathways before, during and after pregnancy
Methodological detailsinternational survey, referral sampling
- International survey
- Referral sampling
Main finding
As reported in the abstract
Organizational care pathways in centers
- Centers following SLE and/or APS patients
- more than 90%
- Multidisciplinary team including obstetrician/gynecologist
- 91.3%
- Centers providing routine pre-pregnancy care
- 96%
- Formalized care pathway
- 49.2%
- Predefined protocol for monitoring pregnant patients
- 20.3%
Observational data: associations, not effects.
Original publication
Patient Care Pathways for Pregnancy in Rare and Complex Rheumatic Diseases: Results From an International Survey. J Rheumatol. Published 15 January 2023. doi:10.
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