How to build a framework to establish a patient research partner network in rheumatology research: a report of a 2-year implementation project
Authors' conclusion
Our initiative outlines five essential steps for establishing PRP collaboration in rheumatology research, including translational research. This approach benefited both PRPs and researchers
Study context
- Population
- Patient research partners (people living with a relevant disease) and researchers in clinical and translational rheumatology researchPRP network
- Participants
- 66 participants
- Outcome
- PRP network and involvement
Methodological details2-year implementation project, qualitative assessment via online questionnaire, Match-making tool to allocate patient research partners (PRPs) to project requests, Five steps: infrastructure, recruitment, training, early PRP involvement, ongoing support
- 2-year implementation project
- Qualitative assessment via online questionnaire
- Match-making tool to allocate PRPs to project requests
- Five steps: infrastructure, recruitment, training, early PRP involvement, ongoing support
Main finding
As reported in the abstract
PRPs in network
66
Projects with PRP involvement
15
Translational research projects with PRP involvement
9
PRP-coordinators providing support (glossaries, educational courses)
2
Original publication
How to build a framework to establish a patient research partner network in rheumatology research: a report of a 2-year implementation project. RMD Open. Published 10 February 2025. doi:10.
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