Lupus & antiphospholipid syndrome

EULAR recommendations for a core dataset to support clinical care and translational and observational research in systemic lupus erythematosus

Ann Rheum DisPublished EULAR recommendations

Methodological detailscore dataset, 4-round Delphi survey, face-to-face meeting, multidisciplinary task force
  • Core dataset
  • 4-round Delphi survey
  • Face-to-face meeting
  • Multidisciplinary task force

Recommendations

As issued by the authors

  1. Initial list of 99 items reduced to 73 items for the clinical core dataset and 8 additional items for the research extension

  2. Items grouped in domains 'general', 'disease activity', 'disease history', 'disease damage', 'comorbidities', 'patient reported outcomes', 'laboratory markers', 'outcomes' and 'treatment', with suggested frequencies of assessment

Original publication

EULAR recommendations for a core dataset to support clinical care and translational and observational research in systemic lupus erythematosus. Ann Rheum Dis. Published 21 August 2025. doi:10.1016/j.ard.2025.07.001

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