Development of patient-initiated follow-up resources for UK rheumatology departments: a co-design study with patient and clinician collaboration
An erratum to this article was published (Lancet Rheumatol, Jul 2026 ↗)
Authors' conclusion
Patients and clinicians were supportive of PIFU and willing to contribute to the co-design of resources.
Study context
- Population
- Patients aged ≥18 years with self-reported inflammatory arthritis and clinicians with and without patient-initiated follow-up (PIFU) experience, UKten online workshops
- Comparison
- Patients vs Clinicians
- Patientsn = 61
- Cliniciansn = nine
- Outcome
- PIFU resources co-designed
Methodological detailsqualitative, online patient-led and clinician-led workshops, multicentre (four UK research centres), steering group oversight
- Qualitative
- Online patient-led and clinician-led workshops
- Multicentre (four UK research centres)
- Steering group oversight
Main finding
As reported in the abstract
- Patient resources: PIFU video in English (subtitles in Welsh, Polish, Urdu, Punjabi, Romanian, Cantonese), FAQ document, infographic with links to patient organisations
- Clinician resources: handbook with case studies and review letter template
- Resources made available on BSR and national patient organisations websites
- 7 patient-led and 3 clinician-led workshops, Oct 3, 2023–April 30, 2024
Original publication
Development of patient-initiated follow-up resources for UK rheumatology departments: a co-design study with patient and clinician collaboration. Lancet Rheumatol. Published April 2026. doi:10.
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