Rheumatoid arthritis

Decision‐Making Around COVID‐19 Public Health Measures and Implications for Self‐Care Activities: Experiences of Persons With Rheumatoid Arthritis

Arthritis Care Res (Hoboken)Published Qualitative study

Authors' conclusion

Across themes, experiences of decision-making about public health measures during the pandemic were embedded with moral concepts of solidarity, autonomy, and trust, with implications for how persons with RA chose and sustained their self-care activities.

Study context

Population
Persons with rheumatoid arthritis (RA) in British Columbia, Canada, strategically sampled from an RCT of a physical activity counseling intervention; interviewed December 2020–December 2021aged 26–86 years
Participants
39 persons
Outcome
Experiences of decision-making about adopting public health measures during the COVID-19 pandemic
Methodological detailsnested in an RCT, one-to-one semistructured telephone interviews, reflexive thematic analysis, patient partners
  • Nested in an RCT
  • One-to-one semistructured telephone interviews
  • Reflexive thematic analysis
  • Patient partners

Main finding

As reported in the abstract

Themes of decision-making about public health measures
  • "Upholding moral values of togetherness": decisions intertwined with moral values of neighborliness and reciprocity; some adapted self-care routines to uphold these values
  • "Relational autonomy-supports and challenges": sometimes felt supported and undermined in different relational settings (eg, family, local community, provincial government)
  • "Differing trust in information sources": decisions shaped by degree of faith in various information sources, incl. their rheumatologists

Original publication

Decision‐Making Around COVID‐19 Public Health Measures and Implications for Self‐Care Activities: Experiences of Persons With Rheumatoid Arthritis. Arthritis Care Res (Hoboken). Published 6 December 2023. doi:10.1002/acr.25262

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