Pediatric rheumatology

Current UK practice in pulmonary screening in paediatric connective tissue disease: UK multi-centre audit and proposed standards

Rheumatology (Oxford)Published Multicentre clinical audit

Authors' conclusion

There are no universally recognized standards on pulmonary screening in juvenile CTDs, leading to inconsistency across centres and between practitioners.

Study context

Population
Patients with juvenile SLE (jSLE), juvenile DM (jDM), jSSc or juvenile MCTD (jMCTD) seen within the last 12 months at five UK centres
Participants
128 patients5 UK centres
Comparison
jSLE vs jDM vs jSSc vs jMCTD
  • jSLEn = 68
  • jDMn = 41
  • jSScn = 7
  • jMCTDn = 12
Outcome
Identified pulmonary involvement; practice of pulmonary screening vs proposed standards
Methodological detailsfive UK tertiary paediatric rheumatology centres, audit standards from national and international guidelines
  • Five UK tertiary paediatric rheumatology centres
  • Audit standards from national and international guidelines

Main finding

As reported in the abstract

Identified pulmonary involvement

Further findings

Screening practice during follow-up

Patients with regular assessment of pulmonary symptoms and signs during follow-up
≤50%
Inconsistent use of lung function testing and imaging for ILD at diagnosis and during follow-up

Original publication

Current UK practice in pulmonary screening in paediatric connective tissue disease: UK multi-centre audit and proposed standards. Rheumatology (Oxford). Published 12 December 2025. doi:10.1093/rheumatology/keaf659

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