Pediatric rheumatology

Children’s experiences of a support program during their first year with juvenile idiopathic arthritis : - Insights from qualitative interviews

Pediatr Rheumatol Online JPublished Qualitative interview study

Authors' conclusion

The results showed that JASP-1 successfully integrated contact through phone calls, visits, and medical and psychosocial support in a satisfactory and accessible way for children recently diagnosed with JIA. This provided them with a comprehensive sense of security.

Study context

Population
Children aged 12–17 years (mean 14 years) in their first year with JIA who had participated in juvenile arthritis support program (JASP-1)aged 12–17 years
Participants
14 children
Outcome
Children's experiences of participating in JASP-1 during their first year with JIA
Follow-up
First year
Methodological detailsindividual semi-structured interviews, qualitative content analysis
  • Individual semi-structured interviews
  • Qualitative content analysis

Main finding

As reported in the abstract

Children's experiences of JASP-1 (three categories)
  • Sense of security through treatment
  • Sense of security through information and support
  • Contact, visits and school presence were in balance

Original publication

Children’s experiences of a support program during their first year with juvenile idiopathic arthritis : - Insights from qualitative interviews. Pediatr Rheumatol Online J. Published 16 September 2025. doi:10.1186/s12969-025-01142-y

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