Children’s experiences of a support program during their first year with juvenile idiopathic arthritis : - Insights from qualitative interviews
Authors' conclusion
The results showed that JASP-1 successfully integrated contact through phone calls, visits, and medical and psychosocial support in a satisfactory and accessible way for children recently diagnosed with JIA. This provided them with a comprehensive sense of security.
Study context
- Population
- Children aged 12–17 years (mean 14 years) in their first year with JIA who had participated in juvenile arthritis support program (JASP-1)aged 12–17 years
- Participants
- 14 children
- Outcome
- Children's experiences of participating in JASP-1 during their first year with JIA
- Follow-up
- First year
Methodological detailsindividual semi-structured interviews, qualitative content analysis
- Individual semi-structured interviews
- Qualitative content analysis
Main finding
As reported in the abstract
Children's experiences of JASP-1 (three categories)
- Sense of security through treatment
- Sense of security through information and support
- Contact, visits and school presence were in balance
Original publication
Children’s experiences of a support program during their first year with juvenile idiopathic arthritis : - Insights from qualitative interviews. Pediatr Rheumatol Online J. Published 16 September 2025. doi:10. 1186/ s12969-025-01142-y
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