Vasculitis & polymyalgia rheumatica

Beyond the symptoms: Personalizing giant cell arteritis care through multidimensional patient reported outcome measure

Semin Arthritis RheumPublished Instrument development and validation study

Authors' conclusion

The developed GCA-PROMs questionnaire is a reliable and valid instrument for assessment of GCA patients.

Study context

Population
Patients with Giant Cell Arteritis (GCA)completed the questionnaire
Participants
54 patients
Outcome
Validity, reliability and responsiveness to change of a disease-specific GCA-PROMs questionnaire
Methodological detailscognitive interviews, Rasch analysis, internal consistency reliability analysis
  • Cognitive interviews
  • Rasch analysis
  • Internal consistency reliability analysis

Performance

As reported in the abstract

Reliability: standardized alpha
0.878-0.983
GCA-PROMs functional disability and QoL correlated significantly with HAQ and EQ-5D
p< 0.01
Changes in functional disability and QoL varied significantly with disease activity status in response to therapy
p< 0.01

Original publication

Beyond the symptoms: Personalizing giant cell arteritis care through multidimensional patient reported outcome measure. Semin Arthritis Rheum. Published 28 October 2023. doi:10.1016/j.semarthrit.2023.152285

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