Pediatric rheumatology

Assessment of Orofacial Symptoms in Juvenile Idiopathic Arthritis: Validation of a Consensus-Based Short Patient Questionnaire

J RheumatolPublished Questionnaire development and validation study

Authors' conclusion

We have developed and validated a short patient questionnaire to assess the multidimensional aspects of JIA-related orofacial symptoms. The PROs included in our questionnaire show acceptable validity and reliability.

Study context

Population
Patients with juvenile idiopathic arthritis (JIA) aged ≥ 10 years95 patients in clinical performance test
Outcome
Final patient questionnaire
Methodological detailsmultiphased, consensus-based, interdisciplinary task force, Conceptual phase: online international survey of 167 healthcare workers, Cognitive script interview and probing (content validity): 16 patients with JIA, Construct validity (convergence and divergence): 53 patients with JIA, Test of clinical performance and psychometric characteristics: 95 patients with JIA
  • Multiphased
  • Consensus-based
  • Interdisciplinary task force
  • Conceptual phase: online international survey of 167 healthcare workers
  • Cognitive script interview and probing (content validity): 16 patients with JIA
  • Construct validity (convergence and divergence): 53 patients with JIA
  • Test of clinical performance and psychometric characteristics: 95 patients with JIA

Performance

As reported in the abstract

PROs included in final questionnaire (pain frequency, pain intensity, pain location, jaw function, symptoms and dysfunction, changes in face and jaw pain since last visit, changes in jaw function since last visit)

7

Patients completing the questionnaire in less than 5 minutes

80%

Original publication

Assessment of Orofacial Symptoms in Juvenile Idiopathic Arthritis: Validation of a Consensus-Based Short Patient Questionnaire. J Rheumatol. Published 1 December 2022. doi:10.3899/jrheum.220667

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