Assessment of Orofacial Symptoms in Juvenile Idiopathic Arthritis: Validation of a Consensus-Based Short Patient Questionnaire
Authors' conclusion
We have developed and validated a short patient questionnaire to assess the multidimensional aspects of JIA-related orofacial symptoms. The PROs included in our questionnaire show acceptable validity and reliability.
Study context
- Population
- Patients with juvenile idiopathic arthritis (JIA) aged ≥ 10 years95 patients in clinical performance test
- Outcome
- Final patient questionnaire
Methodological detailsmultiphased, consensus-based, interdisciplinary task force, Conceptual phase: online international survey of 167 healthcare workers, Cognitive script interview and probing (content validity): 16 patients with JIA, Construct validity (convergence and divergence): 53 patients with JIA, Test of clinical performance and psychometric characteristics: 95 patients with JIA
- Multiphased
- Consensus-based
- Interdisciplinary task force
- Conceptual phase: online international survey of 167 healthcare workers
- Cognitive script interview and probing (content validity): 16 patients with JIA
- Construct validity (convergence and divergence): 53 patients with JIA
- Test of clinical performance and psychometric characteristics: 95 patients with JIA
Performance
As reported in the abstract
PROs included in final questionnaire (pain frequency, pain intensity, pain location, jaw function, symptoms and dysfunction, changes in face and jaw pain since last visit, changes in jaw function since last visit)
7
Patients completing the questionnaire in less than 5 minutes
80%
Original publication
Assessment of Orofacial Symptoms in Juvenile Idiopathic Arthritis: Validation of a Consensus-Based Short Patient Questionnaire. J Rheumatol. Published 1 December 2022. doi:10. 3899/ jrheum. 220667
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