Assessing Patient Values and Preferences to Inform the 2023 American College of Rheumatology/American College of Chest Physicians Interstitial Lung Disease Guidelines
Authors' conclusion
The patient-identified themes played a critical role in ILD guideline development and provide core elements for shared decision-making as clinicians make management and therapeutic decisions with patients with SARD-associated ILD.
Study context
- Population
- Purposefully sampled Patient Panel of people with systemic autoimmune rheumatic diseases (SARDs) (SSc, SjD, IIM, RA, MCTD), consulted to inform the ACR guidelines for screening, monitoring and treatment of interstitial lung disease (ILD); mean age 53 years (range 33–73), 75% women75% women
- Participants
- 21 participants
- Outcome
- Themes of patient values and preferences
Methodological detailspurposefully sampled Patient Panel, modified content analytic approach
- Purposefully sampled Patient Panel
- Modified content analytic approach
Main finding
As reported in the abstract
Themes identified
10
Thematic clusters (communication, screening and monitoring, treatment goals, treatment adverse effects)
4
Observational data: associations, not effects.
Further findings
Participant characteristics
- Mean age, years (range 33-73)
- 53
- SSc
- 38%
- Sjögren disease
- 38%
- IIM
- 33%
- RA
- 24%
- MCTD
- 10%
Original publication
Assessing Patient Values and Preferences to Inform the 2023 American College of Rheumatology/American College of Chest Physicians Interstitial Lung Disease Guidelines. Arthritis Care Res (Hoboken). Published 8 July 2024. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →