Addressing cohort reliance in rare diseases literature: a scoping review of myositis research
Authors' conclusion
Current myositis research demonstrates substantial dependence on a restricted set of study populations, with limited geographic and demographic diversity.
Study context
- Population
- Original research articles on idiopathic inflammatory myopathy (IIM) published 1 January 2021 to 18 May 2023of 2789 retrieved articles
- Participants
- 380 articles
- Outcome
- Extent and impact of duplication bias in contemporary IIM research
Methodological detailssystematic, MEDLINE and EMBASE
- Systematic
- MEDLINE and EMBASE
Main finding
As reported in the abstract
Cohort reliance in IIM publications
Registry-based investigations, share of total publications
10.0%
Publications from Asia
33.4%
Publications from Europe
16.58%
Publications from North America
6.84%
Original publication
Addressing cohort reliance in rare diseases literature: a scoping review of myositis research. Rheumatology (Oxford). Published 16 January 2026. doi:10.
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