The state of data sharing in rheumatology: a systematic review of top journal practices

Rheumatology (Oxford)Published Systematic review

Pooled result · DSS inclusionResult — go to the resultAdjusted odds ratio 0.55 95% CI 0.37–0.82

Authors' conclusion

Our study describes data sharing practices in rheumatology research, highlighting trends in DSS inclusion and journal policies' influence on them.

Study context

Population
Rheumatology clinical studies published in 10 leading journals between 1 January 2020 and 31 December 2023of 1154 publications
Participants
1,108 participants
Comparison
Cohort studies vs Clinical trials
  • Clinical trialsn = 591reference
Outcome
DSS inclusion
Methodological detailsdescriptive statistics, adjusted logistic regression
  • Descriptive statistics
  • Adjusted logistic regression

Pooled result

As reported in the abstract

Adjusted odds ratio

0.55

95% CI 0.37–0.82

P = 0.004

Cohort studiesvs Clinical trials
aOR 0.55 (95% CI 0.37–0.82); P = 0.004
Articles with a data sharing statement (DSS), overall
622 (56.13%)

Further pooled results

DSS inclusion trend by journal, 2020–2023

Six of the eight journals showed an overall increase in DSS inclusion
Rheumatology reached 100% DSS inclusion in 2023

Theme analysis of the 622 DSSs

Data conditionally available
552; 88.75%
Data requiring a data request
479; 77.01%

Original publication

The state of data sharing in rheumatology: a systematic review of top journal practices. Rheumatology (Oxford). Published 8 March 2025. doi:10.1093/rheumatology/keaf138

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