The state of data sharing in rheumatology: a systematic review of top journal practices
Pooled result · DSS inclusionResult — go to the resultAdjusted odds ratio 0.55 95% CI 0.37–0.82Authors' conclusion
Our study describes data sharing practices in rheumatology research, highlighting trends in DSS inclusion and journal policies' influence on them.
Study context
- Population
- Rheumatology clinical studies published in 10 leading journals between 1 January 2020 and 31 December 2023of 1154 publications
- Participants
- 1,108 participants
- Comparison
- Cohort studies vs Clinical trials
- Clinical trialsn = 591reference
- Outcome
- DSS inclusion
Methodological detailsdescriptive statistics, adjusted logistic regression
- Descriptive statistics
- Adjusted logistic regression
Pooled result
As reported in the abstract
Adjusted odds ratio
0.55
95% CI 0.37–0.82
P = 0.004
Cohort studiesvs Clinical trials
aOR 0.55 (95% CI 0.37–0.82); P = 0.004
- Articles with a data sharing statement (DSS), overall
- 622 (56.13%)
Further pooled results
DSS inclusion trend by journal, 2020–2023
- Six of the eight journals showed an overall increase in DSS inclusion
- Rheumatology reached 100% DSS inclusion in 2023
Theme analysis of the 622 DSSs
- Data conditionally available
- 552; 88.75%
- Data requiring a data request
- 479; 77.01%
Original publication
The state of data sharing in rheumatology: a systematic review of top journal practices. Rheumatology (Oxford). Published 8 March 2025. doi:10. 1093/ rheumatology/ keaf138
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