Strengthening patient and public involvement in digital health innovation: reflective analysis of the development and real-world testing of the MyRA application
Authors' conclusion
Continuous patient and public involvement across application development phases can strengthen digital health innovation but requires broader user validation beyond a core group, managing different stakeholder perspectives and expectations, and ensuring clear structures for collaboration.
Study context
- Population
- Patient research partners and experts by experience involved in the development and real-world testing of MyRA, a web-based self-monitoring application for people with RA
- Outcome
- How patient and public involvement was embedded in the development and real-world testing of MyRA, and the impact of this involvement
Methodological detailsmultimethod, retrospective analysis of multiple data sources, inductive and deductive analyses, triangulation
- Multimethod, retrospective analysis of multiple data sources
- Inductive and deductive analyses
- Triangulation
Main finding
As reported in the abstract
- Patient research partners and experts by experience were involved throughout the project and influenced key design decisions
- Post-study questionnaire: both positive experiences and challenges, incl. varied engagement patterns and preferences for application features
- Involvement of patient research partners aligned well with the EULAR recommendations; collaboration seen as valuable, although sometimes complex
Observational data: associations, not effects.
Original publication
Strengthening patient and public involvement in digital health innovation: reflective analysis of the development and real-world testing of the MyRA application. Lancet Rheumatol. Published 21 January 2026. doi:10. 1016/ s2665-9913(25)00341-8
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