Rheumatoid arthritis

Strengthening patient and public involvement in digital health innovation: reflective analysis of the development and real-world testing of the MyRA application

Lancet RheumatolPublished Qualitative study

Authors' conclusion

Continuous patient and public involvement across application development phases can strengthen digital health innovation but requires broader user validation beyond a core group, managing different stakeholder perspectives and expectations, and ensuring clear structures for collaboration.

Study context

Population
Patient research partners and experts by experience involved in the development and real-world testing of MyRA, a web-based self-monitoring application for people with RA
Outcome
How patient and public involvement was embedded in the development and real-world testing of MyRA, and the impact of this involvement
Methodological detailsmultimethod, retrospective analysis of multiple data sources, inductive and deductive analyses, triangulation
  • Multimethod, retrospective analysis of multiple data sources
  • Inductive and deductive analyses
  • Triangulation

Main finding

As reported in the abstract

  • Patient research partners and experts by experience were involved throughout the project and influenced key design decisions
  • Post-study questionnaire: both positive experiences and challenges, incl. varied engagement patterns and preferences for application features
  • Involvement of patient research partners aligned well with the EULAR recommendations; collaboration seen as valuable, although sometimes complex

Observational data: associations, not effects.

Original publication

Strengthening patient and public involvement in digital health innovation: reflective analysis of the development and real-world testing of the MyRA application. Lancet Rheumatol. Published 21 January 2026. doi:10.1016/s2665-9913(25)00341-8

Composed by AI from the published abstract and checked against it. How Briefs are made →

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