Integrating evidence from lived experience of Aboriginal people and clinical practice guidelines to develop arthritis educational resources: a mixed-methods study

Lancet RheumatolPublished Mixed-methods study

Authors' conclusion

The recommendations from this study will inform the development of arthritis educational resources for Aboriginal Peoples.

Study context

Population
Aboriginal people in Australia with arthritis conditions (OA, RA, gout)plus 18 clinical practice guidelines
Participants
30 people
Outcome
Evidence-based, culturally appropriate recommendations to inform arthritis educational resources for Aboriginal and Torres Strait Islander Peoples
Methodological detailscommunity-based participatory action research, research yarns (interviews), systematic reviews of high-quality clinical practice guidelines (AGREE II), Research yarns conducted between Dec 24, 2020, and Nov 2, 2022
  • Community-based participatory action research
  • Research yarns (interviews)
  • Systematic reviews of high-quality clinical practice guidelines (AGREE II)
  • Research yarns conducted between Dec 24, 2020, and Nov 2, 2022

Main finding

As reported in the abstract

Recommendations for arthritis educational resources
  • Content: impact of arthritis on health and wellbeing, when and how to access care, management options (eg, benefits and risks), and disease knowledge (eg, prognosis and addressing misconceptions)
  • Format: jargon-free, with positive lived experience stories, flags, and colourful local art
  • Created by Aboriginal people; delivered by health professionals, family, or Aboriginal Community members as brochures, videos, or yarning circles

Further findings

Participant characteristics

Female participants
21 (70%)
Male participants
nine (30%)
Median age, years (range 22-75)
60
All identified as Aboriginal; none as Torres Strait Islander

Original publication

Integrating evidence from lived experience of Aboriginal people and clinical practice guidelines to develop arthritis educational resources: a mixed-methods study. Lancet Rheumatol. Published 5 December 2024. doi:10.1016/s2665-9913(24)00233-9

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