Integrating evidence from lived experience of Aboriginal people and clinical practice guidelines to develop arthritis educational resources: a mixed-methods study
Authors' conclusion
The recommendations from this study will inform the development of arthritis educational resources for Aboriginal Peoples.
Study context
- Population
- Aboriginal people in Australia with arthritis conditions (OA, RA, gout)plus 18 clinical practice guidelines
- Participants
- 30 people
- Outcome
- Evidence-based, culturally appropriate recommendations to inform arthritis educational resources for Aboriginal and Torres Strait Islander Peoples
Methodological detailscommunity-based participatory action research, research yarns (interviews), systematic reviews of high-quality clinical practice guidelines (AGREE II), Research yarns conducted between Dec 24, 2020, and Nov 2, 2022
- Community-based participatory action research
- Research yarns (interviews)
- Systematic reviews of high-quality clinical practice guidelines (AGREE II)
- Research yarns conducted between Dec 24, 2020, and Nov 2, 2022
Main finding
As reported in the abstract
Recommendations for arthritis educational resources
- Content: impact of arthritis on health and wellbeing, when and how to access care, management options (eg, benefits and risks), and disease knowledge (eg, prognosis and addressing misconceptions)
- Format: jargon-free, with positive lived experience stories, flags, and colourful local art
- Created by Aboriginal people; delivered by health professionals, family, or Aboriginal Community members as brochures, videos, or yarning circles
Further findings
Participant characteristics
- Female participants
- 21 (70%)
- Male participants
- nine (30%)
- Median age, years (range 22-75)
- 60
- All identified as Aboriginal; none as Torres Strait Islander
Original publication
Integrating evidence from lived experience of Aboriginal people and clinical practice guidelines to develop arthritis educational resources: a mixed-methods study. Lancet Rheumatol. Published 5 December 2024. doi:10. 1016/ s2665-9913(24)00233-9
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